Petros writes us a “crazy” and at the same time “unbelievable” case report
Today a true miracle! We needed over 5 people to hold this boy!
Self-harm, very violent, primitive behaviour, urinating/defecating everywhere
totally disrupted sleep cycles 💤, horrific epi-seizures during sleep 😴
Landau-Kleffner syndrome is not autism.
But diagnosing Landau-Kleffner syndrome versus autism can be difficult as the symptoms are similar.
Often EEGs done while your child is awake and only while they are asleep can differentiate between the two conditions.
Are there other names for Landau-Kleffner syndrome?
Health professionals sometimes call this condition acquired aphasia with epilepsy.
How common is Landau-Kleffner syndrome?
Landau-Kleffner syndrome is rare, but researchers aren’t sure exactly how many people have it.
Symptoms and causes
What causes Landau-Kleffner syndrome?
For most children with LKS, no cause can be found. However, about 20% of children with LKS have changes (mutations) in their GRIN2A gene. Children inherit this mutation from one of their parents. But not everyone with this genetic change develops LKS.
Some children with LKS have mutations in other genes. You could be the first person in their family to have the mutation, which is called a de novo mutation.
What are the symptoms of Landau-Kleffner syndrome?
Not every child with LKS has the same symptoms. If your child has LKS, he or she may seem like he or she can’t hear you. He or she may have trouble understanding what you and others are saying to him or her. He or she may also have new developmental delays, intellectual differences, or learning difficulties. Sometimes these speech difficulties can frustrate your child and cause behavioral symptoms such as restlessness, inattention, outbursts of anger, or aggression.
Children with LKS may:
- not be able to speak.
- likely to have seizures.
- likely to have behavioral problems (such as attention deficit hyperactivity disorder).
Dr. Adel Rayess was present when the child was first admitted
Adel then writes me the following message when I ask him:
Dr. Helmut, I saw this patient last July at the Sozo Clinic in Cyprus when I spent a few days with Petros.
It was actually one of the most shocking experiences of my life!
This young man started hitting 5 men one by one in front of me… for more than 10 minutes!
One of these 5 men is a 125 kg, extremely muscular and strong guy, 3 other well built men and Dr. Petros who was desperately trying to hold his head to install the LFMS device.
I must say that I have never seen such devotion from a medical professional to a patient as Dr. Petros did!
This young man was biting Petros’ hands, forearms and right shoulder savagely!!!!!
And Dr. Petros refused to give up on him and endured all this pain just to make this patient better!
PS: I must clarify that Dr. Petros didn’t charge him anything, not even a penny! I’m not even going to call that charity because it’s much more than that…
And now to see that this young man is 100 times calmer… I’m extremely impressed!
Bravo Petros!!!!!
DD on Autism
If you have autism, you may process sensory information differently. You may not be able to tune out irrelevant images or sounds, like the flickering light or microwave in the previous example. Or you may find certain sounds, lights, smells or textures highly distracting or unpleasant.
https://www.autismspeaks.org/sensory-issues
Check out this change! Real Neuromodulation
Check out 👀 the sensory Vsound development
Coming on Sunday! Full charity work and learning
He goes to the toilet now 🚻! No more urinating and thawing and pulling pants and running naked
Only 4 sessions
